One of the members of our closed group shared this story with us and asked us to publish it to spread the knowledge of our disease. This is what you should know about people with fibromyalgia.
1. My pain
My pain is not your pain It is not caused by inflammation. Taking your medicine for arthritis will not help me. I can not ease my pain or shake it. It is not even a pain that remains. Today it is on the shoulder, but tomorrow it may be standing or it may have disappeared. It is believed that my pain is caused by incorrect signals sent to the brain, possibly due to sleep disturbances. It is not well understood, but it is real.
2. My fatigue
I’m just tired. I am often in a serious state of exhaustion. You may want to participate in physical activities, but I can not. Please, do not take it personally. Yes, yesterday you saw me shopping at the mall, but today I can not help you with the gardening work, it’s not because I do not want to. Most likely he is paying the price for emphasizing the muscles beyond his capacity.
3. My forgetfulness
Those who suffer it call it Fibronzebla. You may not remember his name, but I must remember it. You may not remember what I promised to do for you, although you told me a few seconds ago. My problem has nothing to do with my age, but it can be related to lack of sleep. I do not have a selective memory. On some days, I just do not have any short-term memory.
4. My clumsiness
If I tiptoe or clean you five times in a crowd, I’m not directing you deliberately. I do not have muscle control for that. If you are behind me on the stairs, be patient. These days, I take life and the stairs step by step.
5. My sensitivities –
I can not stand it! “This” could be any number of things: bright sunlight, loud or sharp noises, smells. FMS has been called the “everything that aggravates disaster”. So do not make me open the curtains or hear your son scream. I really can not stand it.
6. My intolerance
I can not stand the heat either. Or humidity If I am a man, I sweat … profusely. If I’m a lady, I sweat. Both are equally shameful, so I do not feel compelled to point out this deficiency in me. I know. And do not be surprised if you shake uncontrollably when it’s cold. I do not tolerate the cold either. My internal thermostat is broken and nobody knows how to fix it.
7. My depression
Yes, there are days when I would prefer to stay in bed or at home or die. Severe and unrelenting pain can cause depression. Your sincere concern and understanding can get me off the edge. Your sarcastic comments can take me to the limit.
8. My stress
My body does not handle stress well. If I have to quit my job, work part time or manage the responsibilities of my home, I am not lazy. Daily stresses worsen my symptoms and can completely incapacitate me.
9. My weight
It can be fat or I can be skinny. Either way, it is not by choice. My body is not your body My brain center is broken, and no one can tell me how to fix it.
10. My good morning
If you see me smiling and functioning normally, do not assume that I am like that. I suffer from pain and fatigue chronic disease that has no cure. I can have my good morning, weeks or even months. In fact, good morning are the ones that help me move forward.
11. My uniqueness
Even those who suffer from FMS are not the same. That means you do not have all the problems mentioned above. I have pain above and below the waist and on both sides of my body that has lasted a long time. You may have migraines or hip pain or pain in the shoulder or knee, but they do not have exactly the same pain as any other person.
12. My disability
My disability is invisible but it still exists. It is the same that you do not see air, but it is present, the same happens with fibromyalgia, it exists, it is real. Not everything is in our heads, if it was then, why do not I put something on my head that is more recognizable as cancer, etc. We put this decal of Fibromyalgia disability in their cars and spread awareness fibro.